You know the moment is approaching. A hundred times the notion
has crossed your mind. You have always let it pass -- until now.
Your loved one's medical condition has gotten worse in spite of
your best efforts. His or her personal care needs and need for
supervision have increased. You may feel exhausted. Your own health
may be failing. The need for relief is growing and the help you
have arranged at home is no longer sufficient. Feelings of guilt
and despair may seem overwhelming. These are some of the mixed
thoughts and feelings involved in considering whether to move a
loved one into a residential care setting.
Although some families are able to keep their chronically ill
relatives at home, placement in a long-term care facility may
become necessary -- especially in cases of Alzheimer's disease
or a related dementia. Placement is usually considered a last
resort after other options have been tried. Though this decision is
rarely made with ease and confidence, proper planning can make the
transition less burdensome. The following suggestions may be in
making this most difficult decision:
Take an inventory
First, ask yourself if you have the personal resources needed to
continue to provide home care? Is your physical, mental, and
spiritual well-being at risk? Is your loved one's well-being at
risk? Second, do you have the social resources to continue in this
role? Are other people willing and able to provide practical help
and emotional support on an ongoing basis? Have you explored using
community resources such as adult day services, home care agencies
or hospice care? Identifying what and who is available is
essential. Third, do you have the financial resources to pay for
services at home or in a care facility? The availability of
personal funds or eligibility for government-subsidized programs
can make the difference between home care and care in a facility.
Consultation with a social worker about community resources or with
an attorney about legal and financial planning may clarify these
issues. Contact the Eldercare Locator Resource Center at http://www.eldercare.gov or (800) 677-1116.
Examine care needs
Care needs often get more complicated as a chronic illness
worsens over time. Symptoms can become too physically and
emotionally demanding for the caregiver. A realistic assessment of
the care needs can help determine if those needs would be better
met at home or in a long-term facility. A consultation with one's
medical provider can shed light on the medical outlook.
Achieve a consensus
Allowing trusted family members and friends to share the burden
of decision-making for their loved one can be invaluable.
Communicating facts about the medical condition and feelings it
brings out may enable all concerned to accept a measure of
responsibility for the person's care. A unanimous decision should
not be the goal. The opinion of the primary caregiver must carry
more weight than others, due to his or her unique role with the
care receiver. A consensus takes time to develop but is worth the
effort.
Explore facilities
Get to know the difference between types of residential care
facilities available locally: supportive living, assisted living,
nursing home, and continuing care retirement community. Visiting a
few places can provide a frame of reference in determining the best
option. Visits should be made with someone who can assist in making
an objective evaluation. The quality of facilities varies depending
on many different factors such as staff ratios for all shifts,
physical environment, the schedule of daily activities, the food,
the costs, etc. Checklists are also available online to help guide
this decision. AARP has an excellent, free booklet, Prepare to
Care, available at www.aarp.org
The decision to move a loved one into a care facility is usually
quite complicated and always highly personal. The above ideas are
intended to serve as a beginning guide in deciding whether this
option is appropriate. If indeed this option is chosen, your
caregiving role will continue, but with the help of professional
staff. Both you and your loved one may ultimately benefit from this
change.
Daniel Kuhn, LCSW, is a Community Educator for Rainbow
Hospice and Palliative Care, Mount Prospect, IL
The views and opinions expressed in these blogs do not
necessarily represent those of CMSS or its affiliates.